April 21, 2017
April 20, 2017
Advanced Care Skills in Late Stage Dementia
Whether you work in a skilled or hospice care setting, this program is a must-see for anyone who seeks to provide the most comfort, dignity and quality of life to the person living with dementia.
This program offers step-by-step instructions and hands-on skills for a variety of late stage care needs, all based on Positive ApproachTM techniques to help care partners handle even the trickiest of care tasks and reduce their risk of injury.
• How to calmly get a person out of bed while protecting your back
• How to safely transfer a person from bed to wheelchair
• How to best transfer a person from bed to wheelchair using a SARA lift
• How to bathe and dress a person in bed while protecting their dignity
• How to assist with eating and drinking using the most compassionate care techniques
The end-of-life namaste care program for people with dementia
The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia.
Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives.
This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection.
Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants.
Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice.
Promoting high touch when nursing older people : a palliative care approach [DVD]
University of Western Sydney, School of Nursing and Midwifery
Promoting high touch in nursing older people: A palliative care approach, is an outcome of the project Avoiding “high tech” through “high touch” in end-stage dementia: Protocol for care at the end of life. The DVD is based on material developed by Geriatric Consultant, and Developer of the Namaste Care Program, Adjunct Associate Professor Joyce Simard.
This DVD features a series of short instructional films that outline an effective protocol for palliative care. The approach offers hope and a renewed sense of spirit for people in the last stages of life.
The death talker : what we need to know to help us talk about death
Since the dawn of time, human beings have been curious about death. Most of us have little time in our busy lives to think about the things that are important to us. Often, it’s not until we have a personal experience that we give any serious thought to our own life and our mortality.
The caregiver's path to compassionate decision making : making choices for those who can't
This book includes four adaptable tools that make decision making a simple, step-by-step process; guidelines to help you determine if your loved one or patient can make decisions, and guidance on who should make the decisions, and how to make better decisions. The author suggests questions to use in almost any medical or quality-of-life situation that will help you gather all of the information you need and offers techniques for improving communication between patients, families and caregivers.
listen to the CDs or read the book
“A few conclusions become clear when we understand this: that our most cruel failure in how we treat the sick and the aged is the failure to recognize that they have priorities beyond merely being safe and living longer; that the chance to shape one’s story is essential to sustaining meaning in life; that we have the opportunity to refashion our institutions, our culture, and our conversations in ways that transform the possibilities for the last chapters of everyone’s lives.”
― Atul Gawande,
The things we keep
|:||The Things We Keep is the new novel by Sally Hepworth, bestselling author of The Secrets of Midwives. I think Hepworth is going to cement herself as a must read author for contemporary tales that are a little different and very thought provoking.|
"Anna Forster, in the early stages of Alzheimer's disease at only thirty-eight years old, knows that her family is doing what they believe to be best when they take her to Rosalind House, an assisted living facility. She also knows there's just one other resident her age, Luke. What she does not expect is the love that blossoms between her and Luke even as she resists her new life at Rosalind House. As her disease steals more and more of her memory, Anna fights to hold on to what she knows, including her relationship with Luke. When Eve Bennett is suddenly thrust into the role of single mother she finds herself putting her culinary training to use at Rosalind house. When she meets Anna and Luke she is moved by the bond the pair has forged. But when a tragic incident leads Anna's and Luke's families to separate them, Eve finds herself questioning what she is willing to risk to help them.
Learn how to keep living life to the fullest.
Have you received a terminal or chronic diagnosis? Is your mind succumbing to age or illness? Can you ever find joy, peace, or fulfillment in these challenging conditions? The answer is a resounding YES.
Author Jarem Sawatsky saw the countless guides out there for those caring for the ill and healing the curable, but when he was diagnosed with Huntington's Disease he found there was nothing for those living with incurable illness. He quit his job as a professor and devoted his life to exploring the possibilities of living with chronic conditions. Now he's bringing his findings and insights to you. In Dancing With Elephants, you'll discover: Simple practices to bring healing to your heart and life to your new outlook Humorous (and occasionally heart-wrenching) stories of Sawatsky's own journey Multiple ways to build confidence in yourself, even when you've been shaken to the core A new perspective to cut some of the pain and renew your spirit Practical tools to face your seemingly inescapable fears, and much, much more! Based on the popular blog of the same name, Dancing With Elephants includes insightful interviews with chronic disease experts Toni Bernhard, Lucy Kalanithi, and Patch Adams. Sawatsky's landmark book provides support that only a fellow traveler down this road can offer. If you like touching stories, mindful wisdom, and a touch of irreverent humor, then you'll love Sawatsky's life-changing book. Buy Dancing With Elephants today to discover a new way to live!
Where the Light Gets in : Losing My Mother Only to Find Her Again
Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the "Father of the Bride" movies, the calculating Peggy Kenter on "Nashville," or the wife of country music artist, Brad Paisley. But behind the scenes, Kim’s mother, Linda, was diagnosed with a rare form of dementia that slowly took away her ability to talk, write and eventually recognize people in her own family. "Where the Light Gets In" tells the full story of Linda s illness called primary progressive aphasia from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humour and grace. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, "Where the Light Gets In" is a heart warming tribute to the often fragile yet unbreakable relationships we have with our mothers."
April 19, 2017
Volume 13, Issue 1, p1-102
The worldwide costs of dementia 2015 and comparisons with 2010
The DIAN-TU Next Generation Alzheimer's prevention trial: Adaptive design and disease progression model
•We describe innovative trial design features of interest for Alzheimer's disease (AD) adaptive or prevention trials.
•Dominantly Inherited Alzheimer Network (DIAN) observational study data were used to model autosomal dominant AD (ADAD) cognitive decline.
•The DIAN Trials Unit (DIAN-TU) cognitive composite is sensitive to early cognitive changes in ADAD.
•The disease progression model significantly improves power over traditional analytical methods.
•The DIAN-TU Next Generation prevention trial will test therapeutics to prevent or slow cognitive decline in the ADAD population. p8–19
The Predictors study: Development and baseline characteristics of the Predictors 3 cohort
The Predictors study was designed to predict the length of time to major disease outcomes in Alzheimer's disease (AD) patients. Here, we describe the development of a new, Predictors 3, cohort.
Patients with prevalent or incident AD and individuals at-risk for developing AD were selected from the North Manhattan community and followed annually with instruments comparable to those used in the original two Predictors cohorts.
The original Predictors cohorts were clinic based and racially/ethnically homogenous (94% white, 6% black; 3% Hispanic). In contrast, the 274 elders in this cohort are community-based and ethnically diverse (39% white, 40% black, 21% other; 78% Hispanic). Confirming previous observations, psychotic features were associated with poorer function and mental status and extrapyramidal signs with poorer function.
This new cohort will allow us to test observations made in our original clinic-based cohorts in patients that may be more representative of the general community. 0–27
Prevalence of dementia subtypes in United States Medicare fee-for-service beneficiaries, 2011–2013
The current and future burden of late-onset dementia in the United Kingdom: Estimates and interventions
Blood-based biomarkers in Alzheimer disease: Current state of the science and a novel collaborative paradigm for advancing from discovery to clinic
A common challenge in older adults: Classification, overlap, and therapy of depression and dementia
Late-life depression is frequently associated with cognitive impairment. Depressive symptoms are often associated with or even precede a dementia syndrome. Moreover, depressive disorders increase the risk of persistence for mild cognitive impairment and dementia. Here, we present both the current state of evidence and future perspectives regarding the integration and value of clinical assessments, neuropsychological, neurochemical, and neuroimaging biomarkers for the etiological classification of the dementia versus the depression syndrome and for the prognosis of depression relating to dementia risk. Finally, we summarize the existing evidence for both pharmacotherapy and psychotherapy of depression in demented patients. There is an urgent need for large-scale collaborative research to elucidate the role and interplay of clinical and biological features in elderly individuals with depressive disorders who are at elevated risk for developing dementia. To overcome barriers for successful drug development, we propose the introduction of the precision medicine paradigm to this research field. 9–71
Systematic review of dementia prevalence and incidence in United States race/ethnic populations
Apathy associated with neurocognitive disorders: Recent progress and future directions
Apathy is common in neurocognitive disorders (NCDs) such as Alzheimer's disease and mild cognitive impairment. Although the definition of apathy is inconsistent in the literature, apathy is primarily defined as a loss of motivation and decreased interest in daily activities.
The Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment (ISTAART) Neuropsychiatric Syndromes Professional Interest Area (NPS-PIA) Apathy workgroup reviewed the latest research regarding apathy in NCDs.
Progress has recently been made in three areas relevant to apathy: (1) phenomenology, including the use of diagnostic criteria and novel instruments for measurement, (2) neurobiology, including neuroimaging, neuropathological and biomarker correlates, and (3) interventions, including pharmacologic, nonpharmacologic, and noninvasive neuromodulatory approaches.
Recent progress confirms that apathy has a significant impact on those with major NCD and those with mild NCDs. As such, it is an important target for research and intervention.
April 07, 2017
Book Review by Lauretta Kaldor, Diversional Therapist,
... this would the one to choose. It is based on the most recent research and current practice and makes an excellent tool for any aged care facility, educator or student of recreation.
April 06, 2017
Animal assisted therapy and people with dementia
see how trips to the zoo and animals such as dogs and cats in the home or residential care home can reduce yelling and screaming and abusive behaviors towards nurising staff and lower heart rates of people with dementia ..(.p 7)
Animal assisted therapy : pet therapy : in dementia care
Dementia Behaviour Management Advisory Services Vic
Animal Assisted Therapy has often been applied effectively as a non pharmacological intervention for people that have diminished life skills due to dementia for example: social withdrawal, poor long or short term memory, reduced communication skills as well as reducing BPSD such as: Apathy, vocalising, aggressive behaviour, restlessness. wandering and intrusion.
Animal-assisted brief therapy : a solution-focused approach
- · Guided imagery
- · Progressive muscle relaxation and
- · chair tai chi
This program is designed to help seniors develop strength and enhance the ability to function in daily life. This beginning yoga program improves respiration and circulation and reduces tension. Stronger Seniors Yoga Chair Exercise will help to increase balance, flexibility, and strength. Yoga incorporates simple mind/body exercises focusing on breath and relaxation which help to reduce stress.
Tai Chair is a series of exercises targeted for all older people. They are designed to improve strength, flexibility, coordination and sense of balance through practise of a variety of functional tasks.
|The relaxation therapy manual|
Written for people who already possess skills, this complete guidebook will enable them to use relaxation techniques with both individuals and groups. Divided into four parts, this manual provides essential background information, covers a variety of relaxation techniques, examines the application of relaxation therapy and outlines an eight-week relaxation course. This valuable course contains a week-by-week guide to teaching people relaxation skills and includes session plans, photocopiable handouts and exercises.
Social workers, nurses occupational therapists and care workers who require training in teaching relaxation or who would like to refine their techniques will find this manual immensely useful in dealing with the essential skills.
What works to promote emotional wellbeing older people : a guide for aged care staff working in community or residential care settings
This booklet has been designed for staff working in community or residential aged care services.
It covers a range of interventions that can be used to promote emotional wellbeing or to help people with anxiety or depression.
These interventions are grouped by type, for example, physical activity interventions, and interventions to do with music and the arts.
Some interventions are supported by a lot of scientific evidence, but others are not.
This booklet summarises the strength of evidence for the use of each intervention in each setting, and whether its usefulness has been shown for promoting emotional wellbeing, as well as specifically for anxiety and depression.
Most sections include a short case study to demonstrate how the interventions may be used with older people in aged care settings. The booklet also includes a list of interventions that staff may want to consider if their clients or residents have dementia or memory loss. Finally, this booklet provides some advice to community and residential care staff on how to plan an evaluation of whether or not an intervention has made a difference.
The booklet focuses on psychosocial interventions that can be used in community settings or residential care. Psychosocial interventions include any interventions that emphasise psychological or social approaches, rather than biological interventions such as medications.
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