December 13, 2017

new books for healthcare professionals

Full text articles, DVDs,  books, Books on CD and eResoures are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au

Caring for people with dementia : a shared approach


Caring for people with dementia : a shared approach
Skills in caring for people with dementia are increasingly demanded of all health care practitioners as the numbers of diagnosed increase. Caring for People with Dementia presents-latest research into improving dementia care for both non-expert students and junior staff as well as more senior managers.

Christine Brown Wilson is Associate Professor at the University of Queensland, Australia

Chapter 1: --  Common myths associated with the condition known as dementia   
Chapter 2: --  Developing relationship based approaches to dementia care   
Chapter 3: --  Role of organisation- leading & facilitating relationship- based dementia care   
Chapter 4: --  Developing a biographical approach in care practice   
Chapter 5: --  Managing relationship based approaches to care   
Chapter 6: --  Creating dementia friendly services   
Chapter 7: --  Developing community through dementia friendly environments   
Chapter 8: --  Supporting the families of people living with dementia   
Chapter 9: --  The role of technology in dementia care   
Chapter 10: --  Leading and managing change in dementia care



Person-centred dementia care : making services better with the VIPS framework

What is person-centred dementia care, and how can it be used to improve care for people from diagnosis to end of life? How can we improve services in people's own homes, in care homes, in supported housing and in hospitals? This substantially updated second edition considers recent developments in person-centred care, presenting refreshed guidelines for practice.

Dawn Brooker and Isabelle Latham explain the evolution of the key principles of person-centred care that comprise the VIPS model. 


They describe how it has been applied in diverse service settings, and show how to put the model into practice. 

A new chapter dedicated to culture of care will help service managers to get to grips with this slippery concept, and includes important information on how to guard against neglectful practice. 

Case studies from the CHOICE programme, a research project on culture of care, demonstrate the key factors that are important for people living with advanced dementia and complex needs to live well.


Hope in counselling and psychotherapy

'In a period where short-term, deterministic approaches to mental health seem favoured, O'Hara's Hope In Counselling represents an important, major contribution to the literature of several professions. Presenting an account both rich and broad, the author provides a summary and overview of 'hope' from philosophical, nursing, psychotherapeutic and research perspectives. Of particular importance is his emphasis on going beyond a disease-based model of health, ["Treatment is not just fixing what is broken; it is nurturing what is best' Seligman and Csikszentmihalyi (2000:7)], to place 'hope' within a positive psychological framework. His exploration of the expression and extent to which it is contained within the theory of many different psychotherapeutic approaches makes this book particularly valuable' - 
Ian Townsend, Associate Lecturer, Counselling, University Centre, Blackburn College 
If you are writing an essay on hope in psychotherapy, or counselling, or coaching, this is the main book you will need! It really is thorough and academically respectable, covering all bases in an admirable way. There is plenty of research, some of it conducted by the author himself....There is a good deal of personal material in this book, and I found it eminently readable. I would recommend it quite strongly.
John Rowan
The Association of Counsellors and Psychotherapists in North London

Counseling people with early-stage Alzheimer's disease : a powerful process of transformation

People with early dementia face enormous challenges in coping with their condition, yet they typically receive no personalized education or support following the diagnosis. Counselling empowers them to understand and come to terms with the illness while also learning to manage and make healthy adaptations to it. With the rapid increase in people diagnosed with early memory impairment—and demand for better support services—this ground breaking new guide gives you essential tools to become an integral partner in a process that helps people adjust to the many changes in their lives.
Presenting an innovative new counselling framework designed around the unique problems and needs arising from dementia, Counselling People with Early-Stage Alzheimer’s Disease guides the counsellor and client through the many emotional, practical, and lifestyle issues to be faced.
In her new and easy-to-follow protocol, Robyn Yale—an internationally renowned expert on early-stage support groups—explores topics that include identity and self-esteem, resilience, relating to and educating others, stress management, and more. You will come away with an expanded repertoire of specialized skills and support roles—including coach, care planner, mediator, communications specialist, and problem solver—that will dramatically improve your ability to assist people with early dementia to
• work through complex emotions
• tap into useful coping mechanisms
• focus on capabilities
• adapt to practical circumstances in their day-to-day activities retain maximum autonomy over lifestyle preferences• find new ways to move forward with their lives





Counseling the Alzheimer's caregiver : a resource for health care professionals

This book is a comprehensive evidence-based guide for counseling Alzheimer's caregivers. It describes an approach developed by the staff of New York University School of Medicine's Alzheimer's Disease Center, which has been the subject of a 15-year efficacy trial. The outcome of the study shows clearly that counseling and support can help families keep Alzheimer's disease patients at home and that competent emotional support and referral resources can reduce the negative impact of caregiving on the caregivers.


Continuing bonds : new understandings of grief

This important new book gives voice to an emerging consensus among bereavement scholars that our understanding of the grief process needs to be expanded. The dominant twentieth-century model holds that the function of grief and mourning is to cut bonds with the deceased, thereby freeing the survivor to reinvest in new relationships in the present. Pathological grief has been defined in terms of holding on to the deceased. Close examination reveals that this model is based more on the cultural values of modernity than on any substantial data of what people actually do.
Presenting data from several populations, twenty-two authors - among the most respected in their fields - demonstrate that the healthy resolution of grief enables one to maintain a continuing bond with the deceased. Despite cultural disapproval and lack of validation by professionals, survivors find places for the dead in their ongoing lives and even in their communities. Such bonds are not denial; the deceased can provide resources for enriched functioning in the present.

Using activities and other strategies to prevent, reduce and manage behavioural symptoms of dementia for the family caregiver

Full text articles, DVDs,  books, Books on CD and eResoures are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au






A caregiver's guide to dementia : using activities and other strategies to prevent, reduce and manage behavioural symptoms
Mom has nothing to do—I’m concerned about her quality of life.”
“My husband gets agitated when I need to leave the house—
I don’t know what to do.”
“My father keeps asking the same questions over and over.”


These are some of the common challenges encountered by individuals and families who are caring for a parent, spouse or close relative with dementia. This easy-to-use, practical guide is designed to help at-home caregivers navigate these daily challenges. Although there is no cure for dementia or its many behavioral symptoms, there are clear and proven strategies that can be used to enhance the quality of life for persons with dementia—strategies that can make a real difference for their families.
A Caregiver’s Guide to Dementia explores the use of activities and other techniques to prevent, reduce and manage the behavioral symptoms of dementia. Separate sections cover daily activities, effective communication, home safety and difficult behaviors, with explicit strategies to handle] agitation, repetitive questions, acting-out, wandering, restlessness, hoarding, resistance to care, incontinence, destructiveness, sexually and socially inappropriate acts at home and in public, aggressiveness, depression. Worksheets are provided to help caregivers customize the strategies that work best for them.
The strategies featured in this guide have been used by the authors in their research and reflect approaches and techniques that families have found to be most helpful.


Forgetiquette What to do when someone you love begins to forget. Having a loved one with memory loss is no laughing matter, but a little humour can helpWith her sage advice and trademark irreverence, Joan Sauers helps to relieve the frustration of dealing with dementia sufferers while offering practical advice that will help you help them. Above all she reminds you that, though it may feel like the loneliest job in the world, you are not alone, a very quick and helpful read! 


This book has proved very popular with carers who need a bit of a smile to deal with life as a carer  & a simple quote to ponder on ...



Creating moments of joy : for the person with Alzheimer's or dementia
When a person has short-term memory loss, his life is made up of moments. We are not able to create a perfectly wonderful day with those who have dementia, but it is absolutely attainable to create perfectly wonderful moments—moments that put smiles on their faces, a twinkle in their eyes, or trigger memories. Five minutes later, they won’t remember what you did or said, but the feeling you left them with will linger.

Within the sections are smaller steps. At the end of each step is a place where you can journal your thoughts, solutions, and treasures to help you achieve the overall goal of creating many moments of joy for the person with dementia, and for YOU!

also available as an eBook
Creating Moments of Joy along the Alzheimer's Journey - eBook
To borrow or reserve this item please email NSW.Library@dementia.org.au
or download from our overdrive link 














The selfish pig's guide to caring

Be ing a carer is long, lonely and hard, yet there is limited support and formal training. As a result, carers suffer frequent damage to physical and mental health. Oddly, though carers by definition are anything but selfish pigs, they are liable to feelings of guilt, probably brought on by fatigue and isolation. So Hugh Marriott has written this book for them - and also for the rest of us who don’t know what being a carer is all about. His aim is bring into the open everything he wishes he'd been told when he first became a carer. And he does. The book airs such topics as sex, thoughts of murder, and dealing with the responses of friends and officials who fail to understand.


Let's talk dementia : a caregiver's guide

Carol Howell, a Certified Dementia Specialist and caregiver to her mother, helps to educate the reader on the various forms of dementia. She also provides hands-on tips that make life easier for the caregiver and better for the loved one with dementia. The book is scattered with "smiles" that brighten the day. The author reminds the readers of her motto-"Knowledge brings POWER. Power brings HOPE, and HOPE brings SMILES." You've just got to laugh! "Let's Talk Dementia is an informative and reassuring guide that will help you through what, for many people, can seem like an overwhelming challenge.



December 05, 2017

latest issue of Dementia topics include spirituality, stigma, gardening, challenging behaviours, improving mealtimes and sources of moral distress...

Full text articles and books are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au



Volume 16, Issue 7, October 2017


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pp. 815–834

Although the majority of people living with a dementia live in the community, residential facility care by nursing care providers is a significant component of the dementia journey in most countries. Research has also shown that caring for persons with dementia can be emotionally, physically, and ethically challenging, and that turnover in nursing staff in residential care settings tends to be high. Moral distress has been explored in a variety of settings where nurses provide acute or intensive care. The concept, however, has not previously been explored in residential facility care settings, particularly as related to the care of persons with dementia. In this paper, we explore moral distress in these settings, using Nathaniel’s definition of moral distress: the pain or anguish affecting the mind, body, or relationships in response to a situation in which the person is aware of a moral problem, acknowledges moral responsibility, makes a moral judgment about the correct action and yet, as a result of real or perceived constraints, cannot do what is thought to be right. We report findings from a qualitative study of moral distress in a single health region in a Canadian province. Our aim in this paper is to share findings that elucidate the sources of moral distress experienced by nursing care providers in the residential care of people living with dementia.


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pp. 835–852
Dementia commonly leads to difficulties in performing daily activities, which can also often affect the ability to prepare and eat meals. As a result, formal support to maintain good nutritional intake might be needed, but there is a lack of knowledge concerning how to support older persons with dementia living at home. The aim of this study was to explore and describe staff views on how to improve mealtimes for persons with dementia who are still living at home…
The participants described several ways to improve mealtimes for persons with dementia and advocated adjustments facilitating the preservation of the persons’ independence. Finding suitable actions calls for knowledge about the person and his/her individual situation. Proposed actions were enabling meals at home, taking over, and moving meals outside of the home. In addition, it was found that, the types of meals served to these persons should be as familiar to the individual as possible. The results of this study indicate the importance of using a person-centered approach and meeting the individual needs when supporting people with dementia in regards to their meals when living at home. Individualized care in the home may be expensive, however, it is fair to say that people who become malnourished and admitted to hospitals is even more costly. Furthermore, sharing and reflecting experiences and knowledge can assist staff to identify ways to manage complex situations. Therefore, the use of refection should be a part of staff members’ everyday work.



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 pp. 853–864
Hip fracture occurred more frequently in dementia subjects living in nursing homes than in those living at home (9.2% versus 4.3%). Dementia, residence in nursing homes, and osteoporosis were risk factors for fracture development. Antidementia, antipsychotic, and antidepressant drugs generally had no significant impact on hip fracture risk when prescribed for less than six months. Dementia increased hip fracture risk in German primary care practices.


; pp. 865–877

Background

Behavioural and psychological symptoms of dementia are often the reasons for moving to a care home. Care staff, often with limited dementia training, may have to support residents with distressed behaviour on a daily basis. Evidence about the support of residents with distressed or challenging behaviour in the South African context is lacking. This exploratory study aimed to gain an understanding of what care home staff perceived to be distressed behaviour, their coping strategies and how they learned to work with residents with behavioural symptoms of dementia.

Findings

Findings reflected the literature with regard to examples of behavioural symptoms of people with dementia that staff find challenging to manage. Overall, the majority of staff reported holding positive feelings about working with people with dementia. All preferred interpersonal approaches to manage distressed behaviour above medication although a small minority noted the use of medication in some cases. Dementia training was considered by most participants as an unmet need.

Conclusion

This exploratory study identified care home workers’ desires for training about dementia and their preferences for interpersonal as opposed to pharmacological approaches to managing residents’ distressed behaviour. The legacy of race and cultural perspectives in South Africa appears to still influence care practice and provision. Staff commitment, their interest in advancing their practice and their aspirations to offer more person-centred care were evident. Dementia training was identified as potentially helpful to care home staff who manage residents’ distressed behaviour. Training should be developed in South Africa to promote good practice



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; pp. 878–896

Purpose

Drawing on therapeutic physical environmental design principles and Kitwood’s theoretical view of person-centered care, this study examined the impact of environmental renovations in dining spaces of a long-term care facility on residents’ mealtime experience and staff practice in two care units.

Findings

Based on a systematic analysis of observational data and staff survey responses, five themes were identified: (a) autonomy and personal control, (b) comfort of homelike environment, (c) conducive to social interaction, (d) increased personal support, and (e) effective teamwork.

Implications

Although the physical environment can play an influential role in enhancing the dining experience of residents, the variability in staff practices reveals the complexity of mealtime environment and points to the necessity of a systemic approach to foster meaningful culture change.





pp. 897–910

Abstract

Two-thirds of people with dementia reside in their own homes; however, support for community-dwelling people with dementia to continue to participate in everyday activities is often lacking, resulting in feelings of depression and isolation among people living with the condition. Engagement in outdoor activities such as gardening can potentially counteract these negative experiences by enabling people with dementia to interact with nature, helping to improve their physical and psychological well-being. Additionally, the collaborative nature of community gardening may encourage the development of a sense of community, thereby enhancing social integration. Despite increasing evidence supporting its therapeutic value for people with dementia in residential care, the benefits of horticultural therapy have yet to be transposed into a community setting. This paper will examine the theoretical support for the application of horticultural therapy in dementia care, before exploring the potential of horticultural therapy as a means of facilitating improved physical and psychological well-being and social integration for people living with dementia within the community.



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pp. 911–929

Aims

To synthesize research that investigated how residents and caregivers view spiritual care, come to understand the spiritual needs of people with dementia, and how caregivers provide care congruent with peoples’ needs.

Findings

Spiritual care for persons with dementia was described in the forms of (i) performing religious rituals that provides a sense of comfort and(ii) coming to know the person, which provides opportunities to understand a person's meaning and purpose, and (iii) attending to basic needs provides an opportunity to appreciate others’ vulnerability and humanness.

Conclusions

Spiritual care intended to help persons with dementia to express their faith and religious beliefs, and help persons with dementia experience meaning in life, connectedness to self, God/deity and other persons.


 pp. 930–947

Abstract

Research literature in the dementia field lacks examples of ‘best-practices’ demonstrating concretely how it is possible to support the sense of coherence in people with dementia. The purpose of this study was to elucidate the nurses’ views concerning a caring approach that may support the sense of coherence in people with dementia. The data were collected through participant observation and focus group interviews during a four-month period in 2011. Sixteen registered nurses recruited from two Norwegian nursing homes participated in this study. The data were interpreted using a phenomenological-hermeneutical method. Three themes were identified: ‘being in the moment’, ‘doing one thing at a time’, and ‘creating joy and contentment’. An overall interpretation of these themes is described by the metaphor ‘slow nursing’, a caring approach that may lead to supporting the sense of coherence in people with dementia.



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 pp. 948–964

Abstract

A qualitative exploration of the stigma of dementia reported that general practitioners described lack of reciprocity as one way in which people with dementia are perceived within society. This was closely linked to their perception of dementia as a stigma. In this article, we explore whether general practitioners perceive people with dementia as lacking reciprocity and, if so, if this is linked with societal opinions about dementia as a stigma. The implications of both perceptions of people with dementia failing to reciprocate and of stigma for timely diagnosis are explored. Our approach is to follow the thread of reciprocity in the data from our initial study. In this follow-up study, general practitioners’ perceptions of societal views of people with dementia included a perception of a lack of reciprocity specifically linked with; failing to respond to human contact, the absence of an appropriate return on social investment and failing to contribute to, or being a burden on, society. General practitioners reported a link between societal perceptions of lack of reciprocity and stereotypes about advanced dementia, difficulties communicating with people with dementia, and lack of opportunities for people with dementia to reciprocate. General practitioners occupy a key position, they can challenge stereotypes and, with support and targeted training about communicating with people living with dementia, can emphasize the ways in which people with dementia can communicate, thereby enhancing their potential to reciprocate. Such changes have implications for improved care and quality of life through the continued maintenance of social inclusion and perceptions of personhood



November 28, 2017

Keeping love alive - book review ...you can read or listen to this from our eLibrary or borrow the book or the CD, it's a must read!




Keeping Love Alive as Memories Fade 
(2016)
Authors:  Deborah Barr, MA, Edward G. Shaw, MD, Gary Chapman, PhD
Reviewer: Paul Williams

Keeping Love Alive as Memories Fade is a practical guide to help families and friends sustain their relationship with a loved one living with dementia.

The need for such a book stems from a person with dementia’s dependence on others to care for their personal needs and progressive loss of verbal ability. Both events can lead to a breakdown in the relationship the between the family and their loved one.

However, a person with dementia, like any other person, has innate needs for comfort, social relationships, and engaging in activities they enjoy.

Adapted from Gary Chapman’s book The 5 Love Languages® - The Secrets to Love that Lasts, Chapman specifies five types of interaction that enhance a person with dementia’s quality of life:
·         Words of Affirmation that boost the person with dementia’s sense of identity and of being valued.
·         Quality Time using good listening skills and sensitivity to the person with dementia’s needs. It also includes helping them engage in meaningful activities suited to their current stage of dementia.
·         Receiving Gifts means actions that lighten up the day. For example, remembering anniversaries, or simply a chocolate treat.
·         Acts of Service will vary depending on the person’s stage of dementia. In the mid and late stages of dementia acts of service may include helping with meals, dressing, personal hygiene, and medication.
·         Physical Touch, such as holding hands, or friendly hugs, to give a person a sense of identity and attachment.
Chapman notes that social upbringing and culture drive how we interact with others. Thus, love language works best when two people know each other’s social sensitivities. He provides useful self-tests to help the reader match their interactions to their loved one’s social preferences. 

The book unravels nuances of the word “love” and its usage in dementia care, for example:
·         The apt Hebrew word hesed for a love that “intervenes on behalf of loved ones and comes to their rescue”.
·         If there has been a strained relationship, how to discern emotional love from practical love for person in distress. In Gary’s words “to distinguish between love as a feeling and love as an action.”
Other topics include:
·         Love language “do’s and don’ts” during the stages of dementia
·         Detailed examples of applying love language

Summary

Keeping Love Alive as Memories Fade reflects Deborah Barr’s gift as a health educator. She brings family carers the real-life experience of Dr Edward Shaw’s care of his wife Rebecca, and Gary Chapman’s application of love language to dementia care.
The book shows how love language benefits the person with dementia and the carer alike, for example:
·         The person with dementia will feel they are valued and their needs are respected
·         Reduces the effects of behavioural problems
·         Avoids the use of anti-psychotic medications
·         A carer will see the positive effects of their care in the eyes of their loved one
Of course, love language is not the only concern for family carers, and the authors list additional resources to cover other areas of dementia care.

Conclusion

Keeping Love Alive as Memories Fade fills a major gap in dementia care literature and will help family carers learn how to sustain their relationship with a loved one with dementia.

To borrow or reserve this item please email NSW.Library@dementia.org.au
or download from our overdrive link 




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