July 21, 2017

UK Journal of Dementia Care - Vol 25 4 July/August 2017

Full text articles and books are available to members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au
UK Journal of Dementia Care
Vol 25  4 July/August 2017

Not every dementia book makes a great holiday read (or DVD) but some do!!
Recommended by Jill Manthorpe – director of social care workforce research unit at King’s College London

White Nights: A Thriller (Shetland Island Mysteries)
by Ann Cleeves  

Having a knowledge of dementia will potentially enrich the reading of this book!

of the highly acclaimed Shetland Island series featuring Inspector Jimmy Perez, the launch of an exhibition at The Herring House art gallery is disturbed by a stranger who bursts into tears, then claims not to remember who he is or where he comes from. The next day he's found dead. Set in midsummer, the book captures the unsettling nature of a landscape where the sun never quite sets and where people are not as they first seem
Recommended by Susanna Howard artistic director at Living Words

Still Alice a novel by Lisa Genova
Alice Howland is proud of the life she worked so hard to build. A Harvard professor, she has a successful husband and three grown children. When she begins to grow forgetful, she dismisses it for as long as she can, but when she gets lost in her own neighbourhood she knows that something has gone terribly wrong. She finds herself in the rapidly downward spiral of Alzheimer's Disease. She is fifty years old. Suddenly she has no classes to teach, no new research to conduct, no invited lectures to give. Ever again. Unable to work, read and, increasingly, take care of herself, Alice struggles to find meaning and purpose in her everyday life as her concept of self gradually slips away. But Alice is a remarkable woman, and her family, yoked by history and DNA and love, discover more about her and about each other, in their quest to keep the Alice they know for as long as possible. Losing her yesterdays, her short-term memory hanging on by a couple of frayed threads, she is living in the moment, living for each day. But she is still Alice.

Recommended by Clare Morris – Dementia pathways associate and psychotherapist  

Flow My Tears, the Policeman Said
Philip Dick

This book brings home the role of colluding with or denying the persons' reality and helps us to think about how we can relate to feelings a person with dementia might be experiencing!
"Dick skillfully explores the psychological ramifications of this nightmare."—The New York Times Review of Books
Flow My Tears, the Policeman Said grapples with many of the themes Philip K. Dick is best known for— identity, altered reality, drug use, and dystopia—in a rollicking chase story that earned the novel the John W. Campbell Award and nominations for the Hugo and Nebula.

Jason Taverner—world-famous talk show host and man-about-town—wakes up one day to find that no one knows who he is—including the vast databases of the totalitarian government. And in a society where lack of identification is a crime, Taverner has no choice but to go on the run with a host of shady characters, including crooked cops and dealers of alien drugs.

Recommended by John Killick

The family on Beartown Road : a memoir of learning and forgetting

Elizabeth, a member of the “sandwich generation”—those caught in the middle, simultaneously caring for their children and for their aging parents—is the mother of baby Ava and the daughter of Daddy, and responsible for both.

There is plenty of playfulness and pathos from the the older and younger characters in the story - it's an easy read  and you will often find yourself laughing out loud!

Daddy is a man in his twilight years, for whom time moves slowly and lessons are not learned but quietly, frustratingly forgotten. Elizabeth, a suddenly single mother with a career and a mortgage and a hamperful of laundry, finds her world spiraling out of control. Faced with mounting disasters, she chooses to confront life head-on, and to see the unique beauty in each and every moment.  And just how can a person’s identity be erased overnight?

The tide is turning for carers 
Aims include:

  • ·         challenge perceptions of carers of people with dementia
  • ·         campaign for better support  for carers
  • ·         Influence government legislation and policy
  • ·         Speak on behalf of people who can’t speak out for themselves
  • ·         Provide carers with tools and support
  • ·         Educate people
  • ·         Connect carers with other carers
p. 12

Music Mirrors reminiscence resources
Offers low cost digitally portable  reminiscence resource for gathering musical memories in one place  eg youtube flim clips…

Replacing DoLs “proposal appraised
Impressive proposals from the Law Commission that could spell the end of widely disliked deprivation of liberty safeguards – and will be cheaper and more manageable  
p. 16

Culture and ethnicity : a community of practice
communities of practice are a popular way of promoting mutual learning – colleagues describe how a new one focusing on culture and ethnicity is making a difference

Latest books featured 

P 21


A response framework with untruths as last resort
Sometimes the truth can cause distress – but is it ever right to lie to a person with dementia? Here is a practical framework which allows  ‘therapeutic lies’ as a last resort
meeting the request
substitute or validate the need
redirect to a new need
meet the underlying need via a therapeutic lie ie enter the persons reality – gives examples and shows steps in action

p. 22

A poet’s stories
It is 20 years since  John Killick published his first book of poems inspired by conversations with people with dementia ….

p. 26

Dying well with an intellectual disability and dementia
As more people with intellectual disabilities live into old age, the prevalence of dementia in this group is increasing – this article examines the challenges to dementia practice presented by intellectual disability
Recommendations include;

  • Limited independent living skills
  • Previous communication methods
  • Recognise passive care as active care
  • Draw on range of professional relationships
  • Closest relationships may not be with family
  • Co-morbidities are more common …

p. 28

Care records that value the quality of experience
Quality care requires quality records because “if it isn’t written down it didn’t happen” explains their enriched care reporting as an effective method of reflecting the experience of care home residents
Six Cs of record keeping include;

  • Continuity
  • Correct
  • Claim
  • Candour
  • Contain
It tells the story of the person’s day and reflects the person-centred care plan
Describes how support was given

July 18, 2017

Have you always thought you should give meditation a try? Download an audioBook today and you can begin...

Meditation for Optimum Health: How to Use Mindfulness and Breathing to Heal Your Body and Refresh Your Mind

  • A practical introduction that makes it simple to enjoy the life-changing benefits of meditation - even if you've never tried it before!
  • Describe how meditation can be helpful to those engaged in the medical field
  • Practice mindful meditation in the context of health and wellness
  • Optimizing your life span, letting go of stress, and even enhancing your body's self-healing powers.
By learning to cultivate the power of your attention through daily practice, you can harness the full potential of your mind, and use it to enrich every dimension of your life. 

You will learn how meditation can actually unify your mind and body's many related functions ­and help you start enjoying the best health of your life.

Freedom from addictive thoughts, a sense of ease and inhabiting the present moment can result from practicing Christian prayer or Tibetan, Hindu or Buddhist meditation. 

The authors back up their findings about meditation's ability to ease pain, lower blood pressure and slow heart rate with medical research. Kabat-Zinn systematically guides the listener through various meditation sessions, with reminders to stay aware of breathing, physical sensations and thought patterns. 

if you would like to borrow CDs email nsw.library@alzheimers.org.au 


this simple steps will have you listening on your phone or device in no time!

·         The first step is to download the overdrive app   

     Then search for a library – using Alzheimer’s Australia NSW


       Then when you sign on using your library card the just type in your library logon

·         Then you can search for eBooks and Audiobooks

             Borrow and check your bookshelf   

·     if you need more assistance email nsw.library@alzheimers.org.au  or phone 02  98884239   
      also on overdrive now 

 Don't bite the hook : finding freedom from anger, resentment, and other destructive emotions [CD] or audio download 
by  Pema Chödrön
Life has a way of provoking us with traffic jams and computer malfunctions, with emotionally distant partners and crying children--and before we know it, we're upset. We feel terrible, and then we end up saying and doing things that only make matters worse. But it doesn't have to be that way, says Pema Chödrön . It is possible to relate constructively to the inevitable shocks, losses, and frustrations of life so that we can find true happiness. The key, Pema explains, is not biting the "hook" of our habitual responses. In this recorded weekend retreat, Pema draws on Buddhist teachings from The Way of the Bodhisattva to reveal how we can: stay centered in the midst of difficulty ; improve stressful relationships ; step out of the downward spiral of self-hatred ; awaken compassion for ourselves and others.

July 17, 2017

R sources related to a relatively new approach to dementia care, explore the Butterfly effect!

For a new approach to dementia care, explore the Butterfly effect

Louise DeWolf is the Butterfly Model coordinator at Barunga Village, a retirement home and residential aged care provider in Port Broughton, a township 170 kilometres northwest of Adelaide, in South Australia.
Barunga Village has recently completed a 12-month pilot program for a type of dementia care called the Butterfly Model, originally formulated in 1995 by Dr David Sheard.
While dementia care has a history of being task orientated and institutionalised, DeWolf says the Butterfly Model sees a total transformation in the way people with dementia are cared for, with a focus on their emotions, and replicating home-like environments and everyday activities they enjoyed earlier in life.
“The most enjoyable changes to witness have been the increase in laughter and happiness within the people living in the Butterfly Home, and their meaningful engagements with their families and our staff,” DeWolf said. “Over the past year there has been a definite decrease in the number of falls and positive weight gain in the 16 people who live in the Butterfly House.”
I spoke with Louise DeWolf about this program and I warmly invite you to listen right here:
to borrow these just email nsw.library@alzheimers.org.au

Real culture change: the Butterfly Care Homes experience
In the lead-up to his Australian speaking tour in June, David Sheard outlines the butterfly Household Approach to achieving real culture change in dementia care homes, based on a model of emotional intelligence as the primary competency

Sheard's books and DVDs are  available for loan from the Library
Loving, the essence of being a butterfly in dementia care
This book focuses on changing cultures in dementia care homes offering a practical approach on how to increase connections with people living with a dementia. The book identifies what it takes to ensure the essence of living is at the heart of a care home. The metaphor of a ‘Butterfly’ is used to describe the way in which people can connect in a variety of ways throughout the day, bringing colour and being loving to ‘care’. Each essence of being a butterfly in dementia care is explained and includes a wide range of simple but effective ideas for transforming a care home.

Experiencing the truth in dementia care : Learn how to improve the quality of dementia care with a simple, easy to use method of observation
This DVD demonstrates the power of undertaking an observation within a care setting. It is a learning tool demonstrating why all staff should be given the opportunity to sit in a dementia care home lounge really seeing, hearing and feeling the lived experience of people.

This DVD focuses on ENABLING staff to be feeling based in dementia care. It comprises of a live dementia care workshop where David Sheard
Key Learning Messages

• Listening to the lived experience of people is what matters most

• Implementing together the three elements of group living, relaxed task orientation and being person centred is achievable

• Valuing quality of life moment by moment has to count in person centred dementia care

• Ensuring real qualitative observations occur regularly can transform future care

Making each day count : a guide to day care services for people with dementia
Alzheimer's Society
Essential information for anyone working in day care, providing  a hands-on guide to setting up new services and making the most of existing ones.  This book emphasises the importance of: careful and effective planning; feelings and emotions; understanding individuals; communication; daily activities.  It is packed with useful tips for managers and practical ideas for day care staff.

The 50 point action checklist
David Sheard - Dementia Care Matters
This Checklist is a rough guide to some of the key features in Inspiring Action in Person Centred Dementia Care.  The checklist can also be used to create discussion amongst team members on each other's understanding of the items.  The purpose of the Checklist is to focus on inspiring and improving culture change in dementia care.

Make a difference in dementia care training : resources that are effective, meaningful and fun!
The purpose of the manual is to provide a range of training materials to complement and add value to the trainer's own approaches and to help the trainer generate ideas.  All the material has been designed to be fun.  However, the learning points identified in the exercises keep trainers and participants focused on the key messages of dementia care training.

July 11, 2017

tried and tested card games for people with dementia

to borrow these or the books below just email nsw.library@alzheimers.org.au

Magic memories : a walk down memory game : a game for two or more players

Often people in early stages of dementia lose their short-term memory but their ability to reminisce can be extraordinary. 

The game was designed as a simple aid to reminiscence groups which is not competitive and can be played in a variety of situations. It's ideal for families or co-ordinators of residential and community based settings.

Review by Lauretta Kaldor - diversional therapist : Brain workout cards and books

The Attainments Company have published sets of flash cards which can be the basis of mental fitness programs for seniors and for people who have early dementia.

  • 100 sturdy cards and an instruction booklet on the best way to use the cards. 

  •  suggests the reminiscing of individual senses by reading the card which then encourages discussion.

  • Example of a card that suggests all the senses (in large print).

  • Think back to your childhood. Who was your favourite relative or friend to visit? Did he or she make you special things to eat with unique smells? What kind of music was playing when you visited? Did you just play and visit?

  • Each Mental Fitness card has a short task to complete that will sharpen the mind- many amazing yet simple ideas that make not only good activity ideas but are great common sense!

  • These sets make great activity programs for recreation staff, carers and group leaders.

Lauretta Kaldor is a diversional therapist who has been writing manuals for leisure staff working in aged care for the last 18 years.

Thinking cards : stimulating activities for older adults with mild cognitive impairment.
Specifically designed for older adults with mild cognitive impairment and early Alzheimer's Disease. These 100 mental exercises, activities and memory tips keep the mind active and strengthen existing skills while users have fun! Activities include brainstorming, word activities, memory and music, creative thinking, plus learning new ways to see, hear, touch and smell. Each card has a colourful photo on the back to illustrate its topic and encourage discussion. Ideal for use in small groups or at home. Larger type and simple text encourages hands-on participation. Instruction booklet presents strategies for using the cards, coping and memory tips and suggestions for group leaders. 100 cards, 4x6 inches, instruction booklet, and storage box.

Expand your mind cards
Expand Your Mind Cards to boost your memory. This 100 card set is for baby boomers and beyond, anyone interested in having a healthier brain! Quick, challenging activities stimulate creativity, enhance memory and lift your mood. Six categories ensure all areas of the brain are exercised. Cards can be used by one person alone or by a small group of people. Depending on the activity, some cards also work for groups of 5-15 people. Folding cards have an activity inside and a colorful, related graphic or photo on the back. Boxed set includes facilitator's booklet and 100 laminated cards that fold to 4 inches by 6 inches.

Attainment's mental fitness cards : 100 exercises for a healthy brain, aerobics for the mind
Developed by adult education specialist and teacher Marge Engelman, Ph.D., Mental Fitness Cards can be used by individuals or small groups to keep the mind active at any age. Challenging activity categories like Wake up Your Brain, Memory, Numbers, Words, Creative Problem Solving, Puzzles, and Brainstorming stimulate creative abilities and cover a wide variety of mental exercises. Some exercises look back, but most focus on living in the present and looking to the future. Mental Fitness Cards have 100 activities for keeping the mind stimulated. The boxed card set includes 100 laminated 43 x 63 mental fitness cards and an instruction booklet, which shows ways to use the cards, lists other mentally beneficial activities and explains how mental aerobics help keep the brain alert.

Sharpen your senses cards
by Kristin Einberger and Jo Reynolds
Improve mental fitness using the five senses! Sharpen Your Senses Cards concentrate on the five senses. Users imagine, reminisce, evaluate, guess, and describe their responses to each question. These activity cards are the perfect tool for using the senses to keep the brain active! Great for large or small adult groups of all ages, or for individuals seeking to improve mental fitness. Facilitator's booklet gives suggestions and additional activities. Developed by author and memory loss specialist Kristin Einberger. Boxed set includes 120 laminated 4 inch x 6 inch cards in six categories, instructions and facilitator's booklet.
Activity staff in community programs, adult day centers, assisted living communities, or long-term care settings will find the cards useful and engaging for both large and small groups. Individuals can enjoy Sharpen Your Senses Cards independently, and children can easily participate in intergenerational activities with them.

books to support pastoral care

pastoral care;
is an ancient model of emotional and spiritual support that can be found in all cultures and traditions. It has been described in our modern context as individual patience in which  pastoral carers support people in their pain, loss and anxiety, and their triumphs, joys and victories.

Scar Tissue
An anguished philosophy professor watches his dying mother's measured steps into the mysterious depths of neurological illness: the misplaced glasses, kitchen catastrophes, and anecdotes told over and over to a family overcome with fearful sympathy. 
His strenuous efforts to make sense of his mother's suffering lead him to learn all he can about her illness, renewing contact with his neurologist brother in the process. But medical science can do nothing to ease loss, and genetics now routinely predicts destinies that medicine is powerless to avert.
Scar Tissue explores the fragile lines of memory, their configuration in identity, and the ways in which both are at one moment formed and the next shattered. Nominated for the Booker PrizeScar Tissue is an intensely personal novel about family, love in all its guises, and the ultimate triumph of life over loss.
"Ignatieff's novel impresses in its wisdom as much as in its restraint ... This is a rich novel written by a magnanimous writer with an exquisite talent for naturalism."— The Times

When your parent becomes your child : a journey of faith through my mother's dementia 
[available in book, CD or eBook or Audio-book online ]

As he chronicles his own mother's degenerative condition, New York Times best-selling writer Ken Abraham educates while offering inspiration to help readers cope with and manage their family circumstances. With humor and spiritual reminders of God's command to honor our parents, Abraham encourages readers through often-difficult responsibilities. And though in most cases patients will not recover this side of heaven, he suggests many practical things that families can do to make the experience safer, kinder, and more endurable for everyone involved.

In lieu of flowers : a conversation for the living
With the curiosity of a child and the wisdom of an old soul, Nancy Cobb meets death in the most vital of places: in the lives of everyday people. In doing so she has found a way to infuse this darkest of subjects with light and wit. In Lieu of Flowers proves that what makes us cry can also make us laugh, what depresses us can also enlighten us. 
Cobb's candor and refreshing perspective make the deaths of those she has loved -- and death itself -- a subject to explore rather than avoid.Cobb's personal experiences become a point of departure for what amounts to a longer conversation about loss. 
She shares moments of her own mourning and draws others into the conversation as well: among them, a bank teller who still dreams of her deceased grandmother, two small children who bury a wild bird in its final nest beneath a maple tree, and a hospice nurse who acts as an end-of-life midwife. 
Presented naturally, each anecdote is delivered in a true, clear voice rather than in the hushed tones that too often accompany words of consolation. In telling her stories Cobb opens us up to our own, and she encourages us to accept and honor the "divine intersections" where the living meet the dying.Candid, powerful, and enlightening, this is an extraordinary treatment of one of the most ordinary and difficult experiences of life. death and grief,grief and bereavement,inspirational,politics and social sciences,religion and spirituality,self-help,sociology,spirituality Grief & Bereavement, Pantheon

The four things that matter most : a book about living
Four simple phrases -- "Please forgive me," "I forgive you," "Thank you," and "I love you" -- carry enormous power. 

These four phrases provide us with a clear path to emotional wellness; they guide us through the thickets of interpersonal difficulties to a conscious way of living that is full of integrity and grace. 

Too often we assume that the people we love really know we love them. Dr. Byock reveals the value of stating the obvious and provides insights into how we burden ourselves by hanging on to old grudges unconsciously and unnecessarily.

He shows us how to avoid living with those awkward silences and uncomfortable issues that distance us from the people we love and erode our sense of well-being and joy. 

His insights and stories help us to forgive, appreciate, love, and celebrate one another more fully. The inspiring stories in The Four Things That Matter Most demonstrate the usefulness of the Four Things in a wide range of life situations. 
They also show that a degree of emotional healing is always possible and that we can experience a sense of wholeness even in the wake of family strife, personal tragedy, divorce, or in the face of death. With practical wisdom and spiritual punch, The Four Things That Matter Most gives us the language and guidance to honor and experience what really matters most in our lives every day.

God still remembers me : devotions for facing Alzheimer's disease with faith
This 52 week collection of daily devotions was written for all of God's children who are struggling with the daily demands brought on by Alzheimer's disease. The book is organized in weekly topics to help the Alzheimer's patient deal with their struggles, heartaches, joys, and especially their faith. This collection is an encouraging and uplifting look at how you can deal with a diagnosis of Alzheimer's and continue to live a rich life with faith. 

Spirituality and personhood in dementia 
In recent years, there has been a positive shift in attitudes towards caring for older people with dementia, with a new emphasis being placed on the person rather than the problem and towards a relationship-centred rather than individual approach. Within this context of person-centred care, there is a growing recognition of the significance of a person's spirituality in providing them with a sense of identity and a resource for coping. Spirituality and Personhood in Dementia offers an interdisciplinary discourse on spirituality in dementia care, bringing together wide-ranging contributions from leading theoreticians, theologians, researchers and practitioners. The book provides health care professionals with both a rationale and a practical understanding of the important role spirituality can play in the affirmation of personhood. This comprehensive and thought-provoking collection includes contributions from international authors, discussion of inter-faith relations and spirituality for the non-religious, as well as chapters approaching the subject from Christian and Buddhist perspectives. This book will be valuable reading for nurses, care workers, care commissioners and pastoral support professionals interested in a more holistic and contemplative approach to caring for older people with dementia.

Spirituality in Dementia Care

with Teepa Snow and Rev. Linn Possell
  1. Have you struggled to meet the spiritual needs of a family member living with dementia?
  2. Do you run a faith-based organization and would like to know how to best help a person living with dementia and their families stay connected to their community of faith?
  3. Learn with dementia expert Teepa Snow and Reverend Linn Possell about basic spiritual needs throughout life, what may or may not change when someone is living with dementia and how to best meet those needs.
Watch this program and learn
◾How to meet the spiritual needs that remain when a person is in the midst of brain change
◾How to connect with the spirit of someone living with dementia to create a “soul to soul” relationship
◾How to help family members better manage feelings of guilt, sadness and grief
◾How to offer the highest quality of life by focusing on what the person living with dementia is still able to

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