January 13, 2018

journal of dementia care

Full text articles, DVDs,  books, Books on CD and eResoures are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au


Journal of dementia care 
vol 25 no 6 November December 2017


Antipsychotic use “unacceptable ” says Welsh commissioner
…we have been stuck in a damaging cycle of prescribing antipsychotics for people with dementia, despite the fact that there are minimal benefits and despite the fact that there are there are lots of harms… P 7.

Antipsychotics and dementia : managing medications [DVD]
Professor Henry Brodaty (psychogeriatrician), Dr Julian Pierre (GP) and Tim Perry (consultant pharmacist) discuss the challenge of deprescribing antipsychotics for dementia patients and look for alternative solutions for symptoms.

LGBT and dementia : what we know?
LGBT people’s need’s are often over looked in dementia care…even when the laws change there it has not always resulted in changes in attitudes and behaviours …ALZ Society and the LGBT foundation advised on how to run workshops…Implications for practice included a ‘safe space’  and improved the visibility of LGBT people living with dementia – improved monitoring to inform services improved governance processes and specific training ..p12- 13


The lives of LGBT older adults : understanding challenges and resilience
Lesbian, gay, bisexual, and transgendered (LGBT) older adults have unique and varying physical and mental health needs. Yet their experiences have often been ignored in gerontological and LGBT studies. In this important and timely volume, Orel and Fruhauf bring together crucial research from leading experts in the field to shed light on the unique challenges facing this oft-overlooked but growing population. This book uses a life course perspective to investigate how LGBT older adults have been shaped by social stigma and systematic discrimination. Although many of their experiences are similar to those of younger LGBT individuals, LGBT elders grew up in a particularly oppressive time, which continues to impact their well-being. However, these individuals have also developed coping mechanisms to adapt to stigma, discrimination, and the challenges of aging. Thus, the book explores not only the challenges and needs of this population but also their strengths and resilience. The intersection of cultural factors and personal attributes is highlighted.

LGBTI People and Dementia [DVD]
Alzheimer's Australia
For LGBTI people, often referred to as the invisible Australians, ageing and dementia place them in the vulnerable position of needing to depend on health and aged care services when a lifetime of discrimination and prejudice has taught them always to be wary and to conceal their sexual orientation or gender identity or conceal being intersex.
This training DVD invites you, your service or your organisation to begin looking at what kind of welcome you will offer them.


GLBTI & dementia, a person centred approach : report to the north coast GLBTI advisory committee
The Northern Rivers region of NSW has been identified as one of the main geographical clusters of Gay, Lesbian, Bisexual, Transgender and Intersex (GLBTI) populations in NSW (ACON 2006:9). As the population ages and government and society increasingly recognise the diversity within it, growing numbers of GLBTI people will be encouraged to be open about their identity and will require dementia specific and aged care services. This will also be true for those people of any age living with HIV who may experience Human Immunodeficiency Virus Associated Neurocognitive Disorders (HANDs), ranging from mild forms of cognitive impairment to HIV associated dementia (Denholm, Yong Elliot 2009:575). There is a need for increased community awareness about dementia, HANDs, early detection and special needs within the GLBTI community as well as clear referral and service pathways (Birch 2008:10). It is, therefore, important for Alzheimer’s Australia NSW to collaborate with members of the GLBTI community to facilitate support and advocacy on their behalf to ensure access to culturally appropriate information, education and service provision. Initial steps to engage with the GLBTI community involved close liaison with the Client Services Officer from ACON Northern Rivers to develop the project scope, activities and outcomes and identify key stakeholders. As a result a GLBTI Advisory Committee was established to oversee the development of a pilot education module on GLBTI cultural awareness, ageing, cognitive decline and person centred practice targeting service providers.

Gen silent : a documentary film about LGBT aging [DVD]
Gay, Lesbian, Bisexual and Transgender older people who fought the first battles for equality now face so much fear of discrimination, bullying and abuse in the care setting that many are hiding their lives to survive. Thousands are dying earlier than their straight counterparts because they are isolated and afraid to ask for help. But a growing number of people are fighting to keep their elders from being silenced.
Gen Silent was filmed in the Boston area over a one year period. During that time, director Stu Maddux followed six LGBT seniors through their decision to either stay open about their sexuality or hide it so that they can survive in the long-term health care system.

 Design and dementia ; when less is more
Home like environments with vibrant colours should be a key feature of care home design…
1.    Everyone is different there is no one approach
2.    Clutter is dangerous
3.    Under and over estimation of the power of colour
4.    Achieving a home-like environment
…p. 14-15


Comfort care plans: a collaborative project
What is the best way to implement person-centred end of life care for people with dementia?... key lessons include
·         While the role of the clinician is to promote psychosocial interventions initially there may also be a need for medication to alleviate distress and discomfort
·         It was of great benefit that the GP had already had tan end of life discussion with family
·         Collaboration between mental health professionals and hospice staff supported the palliative care treatment
·         Care home staff felt supported
Included much information sharing  - p. 18 – 19


Transforming power of creative arts
Looks at “Alive inside ”
The article examines connections – as people lose the power to communicate verbally – it examines “widespread good practice” and “enriching lives” …p. 20-21




 this is an amazing must see film!







 Alive inside: A story of music & memory [DVD]
Alive Inside is a joyous cinematic exploration of music's capacity to reawaken our souls and uncover the deepest parts of our humanity. Filmmaker Michael Rossato-Bennett chronicles the astonishing experiences of individuals around the country who have been revitalized and awakened by the simple act of listening to the music of their youth.

Bringing arts interventions into care settings
Opportunities for arts activities in care homes are often limited and their values may go unrecognised – a more ambitious approach may be required… overall managers express positive attitudes towards arts related activities and some facilities personalise arts related activities according to peoples interests … ‘expectations of residents’ – some residents may be reluctant to get involved in art activities and also digital art activities ..thus obstacles   need to be addressed and also include economic factors…discussion followed – p. 24-26
Dementia, disability and rights – new agenda
Articles covering key areas include
  • ·         Health
  • ·         Education
  • ·         Employment
  • ·         Access to justice
  • ·         Personal security
  • ·         Independent living
  • ·         Access to information

Also see how austerity measure shave had an impact on dementia strategies … p. 30-31
Our dementia, our rights: making an impact at the UN
Standing up for the rights of people with dementia is a big ask… Keith Oliver looking forward to a good result p. 33-34

Book review

Person-centred thinking with older people : 6 essential practices


Person centred thinking with older people : 6 essential practices

 Person-centred practices are a key way to provide the best possible care and support for older people and help them to be active and valued members of the community. 

Each of the practices is designed to support the individual and put what is important to and for the person at the forefront of their care. 
Each practice has been tailored so that older people can express more easily what does and does not work for them. By actively listening and making each person feel appreciated, the practices represent practical tools for frontline practitioners to form good relationships with people in their care. With supporting stories and full colour photographs to illustrate how person-centred thinking and practice is used in real-life settings, there are many examples to help practitioners to overcome challenges and to really implement positive, effective changes to care. This practical book will be a valuable resource for care staff, social workers and healthcare workers who want to learn about person-centred practices to deliver best practice care and support.
* Introduction. 1. One-page profiles. 2. Relationship circles. 3. Communication. 4. Histories. 5. Wishing. 6. Working and not working. 7. Person-centred thinking and care and support planning. 8. Circles of support. Final Thoughts.





January 10, 2018

the latest Dementia - The international journal of social research and practice



Full text articles are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au

Table of Contents
Volume 16, Issue 8, November 2017
Articles

Non-pharmacological interventions for managing dementia-related sleep problems within community dwelling pairs: A mixed-method approach
 Rosemary H Gibson et al
pp. 985–1003
Abstract
Dementia-related sleep problems can be complex and challenging. Environmental interventions which resynchronise the sleep/wake cycle have been trialled with promising results for people with dementia in institutionalised settings. However, there is less research concerning community-dwelling people with dementia and their family carers. This study involved a five-week feasibility study including timed light therapy, exercise and sleep education. Sleep and physical and mental functioning were measured at the beginning and end of the trial using objective measures, standardised questionnaires and structured participant feedback. Of 15 community-dwelling pairs who participated, nine completed the trial. The case studies presented here reveal that it is feasible for this population to use non-pharmacological interventions, with positive outcomes. However, there are also issues that can mask benefits or prevent compliance. The options for treating dementia are limited. Environmental interventions may help manage dementia-related sleep problems and further trials would be worthwhile to improve compliance and evaluate effectiveness

Associations between social network characteristics, cognitive function, and quality of life among residents in a dementia special care unit: A pilot study
 Katherine M Abbott et al
pp. 1004–1019
Abstract
This research aimed to ascertain the impact of a pragmatic Cognitive Stimulation Therapy course of 10 sessions on the cognitive function of people living with dementia and whether attending a concomitant carers support group was beneficial to carers. A mixed method quasi-experimental approach was adopted; data were collected pre- and post-intervention. The quantitative arm utilised three validated questionnaires rated by the carers. Qualitative data were collected via semi-structured interviews with carers regarding their perceptions of the impact of Cognitive Stimulation Therapy and the carers support group. Quantitative data analysis found no statistically significant differences within or between groups. The qualitative data demonstrated that carers perceived Cognitive Stimulation Therapy had some benefits for the people living with dementia, especially social benefits. Carers also perceived that attending the carers support group was beneficial for them in terms of gaining a better understanding of dementia, developing coping skills and having peer support. The study was limited in scale and further research with a larger sample, using direct measures of the impact of Cognitive Stimulation Therapy with people living with dementia and supplementary research exploring which characteristic of carers support groups are effective would be worthwhile.

Views from health professionals on accessing rehabilitation for people with dementia following a hip fracture
Stephen T Isbel et al
pp. 1020–1031
Abstract
The literature reports that rehabilitation for elderly patients with mild-to-moderate dementia who have a hip fracture improves functional outcomes. However, access to rehabilitation may be difficult due to misconceptions about the ability of these patients to engage in and benefit from rehabilitation. Additionally, people who are admitted from residential care may not have the same options for rehabilitation as those admitted from home. This study sought to understand from expert clinicians how and why decisions are made to accept a person with dementia post-fracture for rehabilitation. In this Australian-based qualitative study, 12 health professionals across a state and territory were interviewed. These clinicians were the primary decision makers in accepting or rejecting elderly patients with dementia post-fracture into rehabilitation. Three key themes emerged from the data: criteria for accessing rehabilitation, what works well and challenges to rehabilitation. The participants were unanimous in the view that access to rehabilitation should be based on the ability of the patient to engage in a rehabilitation programme and not assessed solely on cognition. In terms of clinical care, a coherent rehabilitation pathway with integration of geriatric and ortho-geriatric services was reported as ideal. Challenges remain, importantly, the perception of some health care staff that people with dementia have limited capability to benefit from rehabilitation. Rehabilitation for this growing group of patients requires multiple resources, including skilled practitioners, integrated clinical systems and staff education regarding the capabilities of people with dementia. Future research in this area with patients with moderate-to-severe dementia in residential care is warranted.

Self-management-support in dementia care: A mixed methods study among nursing staff
 Renate Verkaik et al
pp. 1032–1044
Abstract
Background
Self-management in patients and family caregivers confronted with dementia is not self-evident. Self-management skills may be limited because of the progressive cognitive decline of the patient and because family caregivers are often also very aged. Self-management support by nursing staff is therefore of paramount importance.
Objectives
To gain insight into how nursing staff perceive their self-management support tasks, and how they put them into practice. Research questions are: ‘What are the opinions and experiences of Dutch nursing staff working in home care or residential elderly care regarding self-management support for people with dementia and their family caregivers?' and ‘Do nursing staff feel sufficiently trained and skilled for self-management support?’.
Conclusions
Nursing staff in home care do consider self-management support an important and attractive task in dementia care. Their skills for providing self-management support to patients with dementia and family caregivers need improvement.
Recommendations
Nursing staff need sufficient training to enable the proper provision of self-management support for people with dementia. More attention should also be given to the support of self-management for family caregivers

Measuring positive attitudes toward persons with dementia: A validation of the Allophilia scale
 Jennifer M Kinney et al
pp. 1045–1060
Abstract
Efforts to combat ageism typically focus on negative attitudes toward members of an out-group. Changing attitudes also requires assessment and enhancement of positive attitudes. This study examined the psychometric properties of Allophilia scale when used to measure college students' positive attitudes toward persons with dementia. Data collected from 465 students were analyzed using confirmatory factor analysis and multigroup analysis by gender to assess the validity and reliability of the Allophilia scale. Results showed that the Allophilia scale is valid both for male and female students. The Allophilia scale is a valid assessment tool for measuring positive attitudes toward persons with dementia. Use of this scale will contribute to our understanding of attitudes toward persons with dementia and has implications for the design of interventions to facilitate positive attitudes toward members of this out-group.

Innovative Practice
Editorial: Innovative Practice
 Jo Moriarty
pp. 1061–1063

The challenges of implementing and evaluating a pilot music and movement intervention for people with dementia: Innovative practice
 Patricia Mc Parland et al
pp. 1064–1068
Abstract
This paper reports on the challenges associated with implementing and evaluating an innovative pilot music and movement project. The evaluation documents that participants enjoyed the sessions and that they created the opportunity for social engagement although there is little to suggest this is unique to this particular type of intervention. Difficulties included matching the programme to the needs of participants, communicating effectively, and over burdensome paperwork. The paper also comments on the challenges associated with last minute, limited funding opportunities for both the organisation commissioning a project and the team evaluating it. In this case, the evaluation team found that many of the more difficult issues associated with the pilot could have been resolved with more time for planning and preparation.

Care to talk? A framework for appreciative conversations about dementia: Innovative practice
 Sean Page et al
; pp. 1069–1074
Abstract
When people with dementia are admitted to hospital, both they and their carers and families have crucial roles to play. They should be positioned as the only true experts in the unique individuality of the person and brought into the nursing process as an equal partner in care. ‘Care to Talk’ is a conversational model developed through Appreciative Inquiry to facilitate this way of working. The model, its development and outcomes are discussed.

Evaluation of ‘Dementia Friends’ programme for undergraduate nursing students: Innovative practice
 Gary Mitchell
pp. 1075–1080
Abstract
The ‘dementia friends’ programme was launched by the Alzheimer’s Society in the UK two years ago with the purpose of educating members of the public about the things they can do which can enhance the lives of people living with dementia. The aim of this project was to deliver a two-hour ‘Dementia Friendly Community Workshop’ written by the Alzheimer’s Society, to an entire cohort of first-year undergraduate nursing students in one Higher Education Institutions in Northern Ireland. Following delivery of the programme, students were asked to complete a short questionnaire on their knowledge and confidence in relation to dementia care before and after the Dementia Friendly Community programme. A total of 322 undergraduate first-year nursing students took part in the Dementia Friendly Community programme. Of these, 304 returned questionnaires; 31.25% of students stated their perceived improvement in dementia knowledge was ‘good’ while 49.01% stated their perceived improvement in dementia knowledge was ‘very good’ and 13.49% stated their perceived improvement in dementia knowledge was ‘excellent’. In relation to confidence in engaging with people with dementia, 31.91% stated ‘good’ improvement, 40.79% stated ‘very good’ improvement and 11.84% stated ‘excellent’ improvement. The Dementia Friendly Community programme was positively reviewed by the undergraduate students as it enhanced knowledge and confidence in relation to care of someone living with dementia.


Recipe for Life


Full text articles, DVDs,  books, Books on CD and eResoures are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au





Maggie's Recipe for Life





















Maggie Beer and leading Alzheimer's researcher Professor Ralph Martins have teamed up to fight one of the most debilitating diseases of our later years. With the same risk factors as diabetes and heart disease, and an aging population, the number of Australians living with Alzheimer's is expected to increase dramatically in the next few decades.

However, loss of brain function is not a normal part of aging. The good news is that you can take steps to maintain a heathy brain - by optimising the goodness in the food you eat every day and making some real lifestyle changes such as increasing regular exercise and mental activity. You can eat well to age well, from this moment on. Even when the symptoms of Alzheimer's appear, a healthy lifestyle can slow its progression.

Based on the latest scientific research, Maggie has created more than 200 recipes that provide the nutrients we need for optimum brain health. Maggie's delicious, easy recipes give true pleasure at the table, enhancing your health and longevity without deprivation or sacrifice in flavour. There are also quick ideas for meals on the run, a list of pantry items always to have on hand and many practical hints for running your Maggie-inspired healthy kitchen.



also by Ralph Martins
Understanding Alzheimer's : the complete Australian guide to the management and prevention of Alzheimer's
Ralph Martins
The book is aimed at those in the early stages of the disease, as well as  families, friends and professional carers. There are chapters on diagnosis, research, prevention, treatment, legal issues, impact on loved ones and decision making to do with caring for patients.  Also good chapters on diet and risk factors. In addition to practical information and advice, each chapter contains a case study; these detailed accounts provide a personal and heartfelt perspective on the disease.




Better brain food : eat to cheat dementia and cognitive decline
Ageing is a triumph of modern medicine. On average we can expect to live 10 or 20 years longer than our grandparents' generation. 
These extra years are a wonderful bonus but also impose unprecedented challenges to our bodies and brains.
Recent scientific investigations have uncovered foods and ingredients that can help protect brain cells from damage by oxidation and inflammation, and keep the systems that support them working as well as possible. 

There is no magic pill (and beware of anyone who claims a simple solution), but there is evidence-based advice on foods and lifestyle strategies that can give your brain the best chance of peak health. 

An international authority on nutrition for aged care, dietitian Ngaire Hobbins presents a compelling argument that the food you eat can make a big difference to your quality of life as you age. Combined with inspiring recipes that offer optimal nutrition for brain health and can be adapted for households for singles to larger families, Better Brain Food is the lifestyle guide you need as you or those you love grow old.

The longevity list

  • Red wine is good for us. 
  • Alcohol is bad for us. 
  • Cut out sugar. 
  • Eat less fat. 
  • Eat more fat. 

Every day we're bombarded by often-contradictory advice on what to do to keep ourselves healthy. How can we separate fact from fad? 

Written by a medical clinician, this is the ultimate myth-busting guide to what will really help us live a long and healthy life. Professor Thomas looks at each item on the 'longevity list' in turn, analysing why it's come to be considered a health priority, and giving his scientifically backed verdict on how much attention we really need to pay to it. 

You'll learn everything from why taking statins to lower LDL cholesterol might not be a good idea for everyone with higher than desirable levels, to whether there's a connection between donating blood regularly and living a longer life. 

Along the way you'll discover stacks of intriguing, entertaining and often very funny facts. Why do people get drunk more quickly on champagne? 
  • Is caffeine really a performance-enhancing drug? 
  • Can chocolate improve your sex life? 

This is the one-stop checklist to living a life that might just see you reach your 100th birthday and beyond!







Smart brain, healthy brain
by Louise Hallinan




Contents: Step1 identifying the causes of memory problems -- medical – lifestyle -- step 2 -- avoid foods -- you are what you eat -- step 3 -- let’s do some testing -- step 4 -- prevention -- vitamins -- food and supplements for the brain -- give your brain a workout -- homeopathy -- step 5 -- lifestyle -- smart brain life style -- where to from here -- endnotes -- about the author

or try our eLibrary
download these to your phone 

To borrow or reserve this item please email NSW.Library@dementia.org.au
or download from our overdrive link 
https://dementia-e-library.overdrive.com and search for the dementia Australia library 



December 20, 2017

The Australian Journal of Dementia Care - Dec 2017 - Jan 2018 : Vol 6 No 6

Full text articles, DVDs,  books, Books on CD and eResoures are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au


The Australian journal of dementia care

Building staff capacity to provide responsive care
Elizabeth Beattie introduces Dementia Training Australia’s new Responsive Behaviours Consultancy – a staff training program to help residential aged care organisations address and reduce dementia related responsive behaviours.
One of the most pressing issues in the care of people living with dementia is that of behavioural changes associated with multiple and complex factors. These factors include, for example, those related to the progression of dementia, such as changes in the ability of the person to adequately express their own thoughts and feelings.
Of equal importance are the legibility and comfort of the person’s physical environment, the effects of psychotropic medications they have been prescribed, the extent to which their expressed preferences and needs are well understood and met, and the way that staff and family involved with the person relate to them.
Building-staff-capacity-to-provide-responsive-care-dementia
Paradigm shift
The philosophy of person-centred care has contributed to a major paradigm shift in the way we think about the care of people living with dementia. An understanding by staff of how their own behaviour can be a powerful influence – both positive and negative – in determining the way in which people living with dementia respond to and experience care is central to improving care.
Yet, as noted in the recent Australian Government Aged Care Workforce report (Kostas et al 2017), considerable ongoing attention to staff training is required in the aged care sector for us to match care aspirations with care realities.
Intensive support
The Responsive Behaviours Consultancy (RBC) is a staff training program offered to residential aged care organisations or other providers by Dementia Training Australia (DTA) as part of a DTA Tailored Training Package. (DTA is funded by the Australian Government to deliver a range of dementia training opportunities to the aged and health care sectors.)
The RBC is offered after a DTA training needs analysis and discussion with a representative from the interested organisation has identified a need for intensive support to improve the way staff address the responsive behaviours of people living with dementia.
Lead And Learn
Once a RBC plan is agreed, DTA will deliver the Lead And Learn Education Program, a core element of the consultancy.
The program is delivered to care champions nominated by their organisation. It’s designed to help create a sustainable capacity-building education framework for addressing and reducing dementia-related responsive behaviours and to build a small group of care champions in a facility.
Throughout the program the champions are closely mentored by DTA staff and supported to develop as leaders in responsive behaviour care. The program content is delivered by a DTA consultant who remains the ongoing contact throughout the program.
Components of the Lead And Learn Education Program include:
•An introduction to the concept of responsive behaviours within DTA’s salutogenic framework. The salutogenic approach looks beyond problems and symptoms and focuses on factors that support health and well-being, rather than pathogenic factors that cause disease.
•An exploration of several models to assist with understanding the factors underlying responsive behaviours, for example the Need-Driven Dementia Compromised Behaviour Model (Kolanowski 1999) and the Progressively Lowered Stress Threshold Model (Hall & Buckwalter 1987).
•An exploration of individual behaviours, including assessment processes, strategies and evaluation that can be used to reduce the impact of behaviour changes on the person living with dementia. Case study scenarios are used to show how this is applied in practice.
The education involves input from experts in the assessment of the older person and dementia-related behavioural changes, stimulating video clips and realistic case study discussion sessions. Specific sessions on workplace leadership and mentoring and managing staff who are providing daily care to people living with dementia are included.
Dementia Training Australia’s (DTA’s) new Responsive Behaviours app provides a quick guide to responsive behaviours for health professionals and care staff in all settings.
The app features prompts on what to consider and tips on how to respond to 10 common responsive behaviours: agitation, apathy, anxiety, aggression, depression, disinhibition, psychotic symptoms, sleep disturbance, vocally disruptive behaviour and wandering. There is also a section on delirium.
Links to recommended tools for assessing each behaviour are embedded, and frameworks for addressing responsive behaviours (eg Need-Driven Dementia Behaviour Model (NDB) and the PIECES mnemonic) are included.
The app is based on DTA’s Behavioural and Psychological Symptoms of Dementia (BPSD) Quick Reference Cards. The app incorporates the ‘lanyard card’ checklists: how well am I communicating?; getting to know the person living with dementia; and understanding the behaviour.
The Responsive Behaviours app is free to download for phone or tablet from the App Store or Google Play Store
Henthusiasts! Bringing HenPower to Australia p 12
Karn Nelson, from aged care provider The Whiddon Group, reports on the first Australian trial of HenPower, an evidence-based and easy-to-run program that uses hen-keeping and creative activities to combat social isolation among older people, especially those with dementia, in residential care.
Three models – 1 the each resident has their own chook model, 2 farm model where residents participate in chook keeping chore, 3 chooks are located in the courtyard.
Results included a decrease in depression and an increase in quality of life.
Themes include  1. Empowerment  2. Connection 3. Physical and mental health benefits.
A response framework with untruths as a last resort p 20
Sometimes the truth causes distress, but is it ever right to lie to a person with dementia? Edward O’Connor, Ian James and Roberta Caiazza describe a practical framework which allows for ‘therapeutic lies’ as a last resort.
Four steps 1. Meet the request 2. Substitute or validate the need 3. Redirect to a new need 4. Meet the underlying need via a therapeutic lie (ie enter the person’s reality)… the truth may not be in the person with dementia’s best interest .

Creating Agents of Change p 18
Kate Laver and Monica Cations describe an initiative to improve dementia care practice with a network of Quality Collaboratives of health and aged care professionals across Australia


Supporting culturally competent care p 24
Mary Gurgone and Anne Butorac discuss a project to improve cultural cohesion within the residential aged care workforce 
*for cultural competence : have a defined set of values and principles and demonstrate behaviors, attitudes , policies and structures that enable them to work.
Have the capacity to 1. Values diversity 2. conduct cultural self-assessments 3.manage the dynamics of difference when cultures interact  4. Acquire institutional cultural knowledge and 5. Adapt service delivery to reflect diversity and cultural contexts.- access Aged Care Diversity Check audit tool
Tools
Resources
Diagnostic and Review Tools – Fortis have designed several tools to help our clients understand where they currently sit and how they can improve. One of our significant tools  the Pulse Survey (designed to assess the current diversity profile and cultural competence) – has been made available for free (click below).
Capability Development – Fortis have honed a number of award-winning tools which build and strengthen your capabilities to improve performance and productivity. Two of our foremost tools are the Culture, Communications and Relationships at Work Program (online and face-to-face) and the Keys to Diversity online program. Click below for more information.
Community Engagement and Development – we have designed tools and programs specifically for supporting and strengthening your community. Refer to our PICAC homepage for information on specific resources, tools, events etc relating to community engagement and development.
External Resources – In supporting our clients to achieve outcomes for themselves and their stakeholders, we have created a list of additional resources that can support specific issues, and overcome challenges within organisations and communities across numerous sectors.



A home away from home p 28
Jason Burton and Marlene Grogan describe how Alzheimer’s WA has transformed its day respite services with the Enabling Households model that delivers better outcomes for clients with dementia and carers . the enabling household focuses on everyday activities that interest individuals by knowing them – the model is fluid, staff don’t wear uniforms just name badges which support memory; staff and members eat together  (staff breaks are taken at other times)  and members families and volunteers are involved in planning shopping and preparation service and enjoyment; the community is an active part of the club and members are an active part of their community- engaging in everyday activities – the enabling household is owned by the clients


Helping carers rethink respite p 16
Lyn Phillipson reports on the results of a project to promote the benefits of respite to carers and improve uptake of respite services…
ReThink respite activities
ReThink respite coaching  leads to  change in knowledge and attitudes and changes in self sufficiency and changes in behavior


Empowering consumers p 15
Tiffany Jessop reports on an upcoming national campaign to promote informed, legal and ethical prescribing of psychotropic medication for people with dementia


Australian Dementia Forum highlights
The recent Australian Dementia Forum 2017: Progress on the Boosting Dementia Research Initiative (ADF2017) was an opportunity to share knowledge and information about the latest dementia research. Jo Haslam reports


A poet’s stories p 32
It is 20 years since John Killick published his first book of poems inspired by conversations with people with dementia.  Recently, he has been looking back on these formative experiences and he shares some of the poems which have resulted
We have all his books in the library ….


Improving children’s attitudes to dementia p 34
Jess Baker presents a summary of results from a pilot study of the Kids4Dementia program, which teaches primary school children about dementia..
Students in years 5 and 6 … things to do with a loved one in a residential care home include

  • Play a board game
  • Bring in a special books to look at together
  • Interview them and type up their personal history
  • Bring in ribbons and awards you have won
  • Play games on ipad with them
  • Play chess, chequers or noughts and crosses
  • Watch a favorite show or dvd with them

these are some of the books Jess Baker focus tested and are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au

Brief notes on which books about dementia work with children and why

after focus testing this is what the kids say!
Book Notes - great books

·         Wilfred Gordon Macdonald Partridge J proactive/helping them/doing something. setting nursing home.  Not afraid - models no fear. Likes all the people.

·         The Forgetful Elephant: J Analogy to broken arm, and how can’t plaster inside his head.  Just needs help, make it fun.  Active again.  for the younger reader.

·         Striped Shorts and Flowered Pants: J Family dynamics. Addresses some fears. What can do etc.

·         Lucas & Jack:  J Old people generally.  Really like person theme. 

·         Getting to Know Ruben Plotnick: J Cool boy, good modelling. Fun. 

·         Ceila & Nonna: J Doing again.  Person Theme.  Quite like it, just helping nan and child, no-one else involved.

·         The Smell of Chocolate: Music.  Weaved behaviours into the story, e.g. wet pants, repeated himself, threw fist into cake.   Facts a bit tedious, too big unnecessary words, e.g. confabulation. 

·         Mile High Apple Pie: Describes short term memory loss versus long term memory loss.  Models hugs and fun and inconsistency.  Is a person.

·         When I visit granny Jean: Batteries running out. set in a nursing home . Person theme. Touch.


·         The Old Man Who Loved to Sing:  Not directly about dementia, but something lovely about it.

·         What’s happening to Grandpa?
Good content, but a bit tedious. 

       Why did grandma put her underwear in the refrigerator?:  . Funhouse mirror analogy- look different but same person.
  

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